I headed into this previous weekend feeling very assured that I’d be capable of fully end the mural wall within the studio, and present up this morning to point out you all types of images of the completed wall. However everyone knows how plans go, proper?
Sadly, issues didn’t work out how I had deliberate them. I simply have a pair extra issues to do (largely electrical, however a little bit little bit of portray), nevertheless it’s nonetheless not completed. *Sigh*
Matt’s M.S. has actually wreaked havoc this 12 months, and this summer time has been particularly tough. Due to M.S., Matt could be very delicate to climate extremes, whether or not it’s excessive scorching or excessive chilly. Due to his sensitivities, we’ve to maintain our thermostat on 67 levels 12 months spherical. If it will get a lot hotter than that, he loses all power. If the temperature dips a lot beneath that, he will get chilly and that causes his muscle tissues to grab and tremor.
There have been instances that I’ve examined to see if that is all in his thoughts. With out telling him, I’ve on events raised the thermostat to 69 levels, considering that there’s no manner he would discover. However each single time, with out exception, inside about 90 minutes, he’s calling me into the room, asking me what the thermostat is about on, as a result of he’s feeling scorching. I’ve by no means been in a position to get away with elevating the thermostat. He can all the time inform.
So you’ll be able to think about how this previous Texas summer time was for him. I misplaced depend of the variety of 100+ diploma days we had in a row with no reduction in sight (I feel the streak was one thing like 45 days in a row), and so lots of these days had “seems like” temperatures surpassing 110 levels, and even as much as 115 levels. There have been so many days with excessive temps and excessive humidity, which is a horrible mixture for Matt. When it will get that scorching, it doesn’t matter that our thermostat is about on 67 levels as a result of there’s no manner our air conditioner can sustain. (We’ve by no means had an issue till this 12 months, and regardless of what number of instances we had it checked and labored on, it simply wouldn’t sustain. However this was additionally the second hottest Texas summer time on document.)
Evidently, the final three-and-a-half months have been horrible for Matt. And when issues are horrible for Matt, they’re no stroll within the park for me, both. He has required rather more assist and a focus from me over the previous couple of months than he often does. And that implies that my work on the home slows and my progress appears to crawl at a snail’s tempo.
I do know my common readers perceive our scenario, and I’m so grateful for the grace and understanding that y’all prolong to me. Different DIY bloggers who’ve able-bodied spouses serving to them with initiatives (or caring for different issues whereas they will concentrate on initiatives) can end these initiatives in a fraction of the time it takes me these days, and it’s typically tough for me to not really feel responsible about that. However then I remind myself of my one single decision that I made for 2023. No guilt. I turned decided that I wasn’t going to heap guilt upon myself for issues I can’t management.
Particularly, what I mentioned was this: I’m only one particular person, and I solely have a lot time. I’m going to do what I can (whereas really attempting to make use of my time effectively), not do what I can’t, and really feel zero guilt about it. (You may learn extra about my one solitary decision for 2023 right here.) That mindset has helped me a lot throughout this tough 12 months.
However again to this previous weekend. Matt and I celebrated our twenty first wedding ceremony anniversary final Thursday. Twenty-one years! That’s laborious to consider. However, as has been the case for the previous couple of months, Matt simply wasn’t feeling as much as leaving the home, so he let me select a restaurant, and I went and picked up a meal for us from my favourite restaurant. (My favourite restaurant is Rosa’s Café, by the way in which. 😀 I’m a easy particular person. Give me fajitas, and I’m joyful.) So we ate lunch, watched just a few of our favourite exhibits, and had a really stress-free afternoon.
However later that night, he began feeling actually weak. That didn’t shock both of us. He’s very delicate to meals, which is why he feels his finest when he eats an unusually restrictive food regimen (steak, butter, salt, and water). But it surely’s simply so laborious to eat such a restrictive food regimen! Simply think about that every one you’ll be able to ever ingest is steak, butter, salt, and water. How boring. So he craves some selection typically, however he and I all the time know that he’ll pay a value for it. It’s a commerce off that he’s keen to make typically. And positive sufficient, on Thursday, he paid a value for consuming Rosa’s with the weak spot and exhaustion he felt later that night.
Typically, when that occurs, he simply wants a great evening’s and he wakes up the subsequent morning feeling (his) regular once more. However he didn’t sleep properly in any respect, and he awakened Friday morning feeling exhausted, weak, and groggy. He appeared actually out of it, like he had taken a muscle relaxer or one thing. The entire day was like that, like he couldn’t totally get up. He slept lots in the course of the day, however naps in the course of the day usually don’t assist Matt. They only make him weaker and groggier. So I just about caught by him all day on Friday, not desirous to get too far-off (like working in my studio) in case he wanted assist ingesting water or one thing like that.
He slept higher on Friday evening, and did a little bit higher on Saturday, though he nonetheless wasn’t again to (his) regular. And since I used to be coping with some sciatic nerve ache that morning, I actually didn’t wish to prepare dinner, so Matt wished me to go to Sonic to get us some lunch. For some very unusual purpose, Sonic is likely one of the solely locations the place I can get meals that Matt doesn’t react negatively to. I’ve no rationalization for it, as a result of clearly, Sonic isn’t heathy meals. However about 98% of the time, he can eat it with out struggling any unfavourable penalties. Like I mentioned, I can’t clarify it.
What I didn’t notice is that Matt solely ate half of a fairly small hamburger, and that’s it. And that’s all he ate all day lengthy. He gave the impression to be doing higher than the day earlier than, so I after we ate, I headed to the studio to work, and he by no means mentioned a factor to me the remainder of the day about being hungry and desirous to eat. So I simply saved on working till bedtime, not realizing that every one he had eaten all day lengthy was half of a small hamburger.
Sunday, I went to breakfast with my mother, with the plan that I’d cease and get Matt Sonic on the way in which residence, sit with him whereas he ate, after which spend the remainder of the day engaged on the studio. However once I received residence from breakfast with my mother, Matt wasn’t doing properly in any respect. I checked his temperature to see if he had a fever, nevertheless it was regular. And he didn’t appear sick. This wasn’t like a flu or COVID. It was simply excessive weak spot and exhaustion, so he didn’t wish to (and possibly wouldn’t have been in a position to) eat straight away.
So I spend some time attempting to assist him in numerous methods — serving to him drink iced water to chill down (he was complaining about being scorching, however then he’d get chilly, after which scorching once more). I gave him some electrolyte drink. That appeared to perk him up a bit. And I simply saved attempting to do different issues that will preserve him snug. Once more, I didn’t wish to stray too far in case he wanted me.
After a few hours, he was lastly able to eat, so I put his meals in a bowl and gave it to him, and we watched a present whereas he ate. When the present was accomplished, he mentioned he was completed consuming. He gave the impression to be doing higher, so I headed the studio to work. I used to be lastly in a position to begin working round 7:00pm.
After about an hour, I headed again to the bed room to examine on Matt, and as soon as once more, he was doing terribly. Once more, he had excessive weak spot, issue speaking, and so on. I attempted giving him extra electrolyte drink, nevertheless it wasn’t serving to this time. After about half-hour of attempting different issues, and him attempting to talk to me (however I couldn’t perceive him), I lastly understood him to say that he wished to go to the hospital.
Properly, when he will get like that, I can’t get him into his wheelchair. So regardless that we’ve a wheelchair van now, there’s no manner I can get him to the hospital. When he will get that weak, it’s like attempting to wrangle a 200-pound mound of Jello. So I referred to as 911 and the EMS got here. They took all of his vitals, and all the things was regular aside from blood strain, which was elevated. He often has regular blood strain, so I’m virtually 100% positive it was elevated as a result of he was feeling anxious and scared and giving himself a little bit mini panic assault.
After they talked to him some time, he really appeared to relax a bit, and even laughed at just a few of their jokes. The lighter issues received within the room, the higher he might communicate, and the simpler it was to grasp him. And that’s once I realized that for the second day in a row, all he had eaten was half of a (fairly small) hamburger.
So principally, Matt had been virtually fasting for 2 days. And if there’s something it is advisable to find out about Matt, it’s that he can’t quick. Matt likes to quick, and if he might have his manner, he’d quick for every week at a time. And whereas he used to have the ability to quick with ease and really feel nice doing so, he merely can’t do it anymore. Fasting makes him extremely weak and exhausted. So whereas he hadn’t precisely been fasting, he had been consuming so little that he might as properly have been fasting.
After the EMTs had been right here for some time, and Matt’s nervousness appeared to raise, he lastly determined that he didn’t wish to to go to the hospital. However they inspired him to eat one thing and to attempt to get a great evening’s sleep. In order quickly as they left, I made him a ribeye steak. However as a result of he was so weak, I needed to mix it for him (yep, I blended up a ribeye steak, together with numerous butter and MCT oil as a result of good fat are mind meals), and I stood by the mattress and fed him blended steak with numerous fats. And as he ate, it was like watching him “recharge”. By the point he completed, he had extra power and regarded extra alert than he had in days. It was superb.
So after a great evening’s sleep (which he lastly received final evening), Matt is lastly again to his regular this morning. And he and I are each so relieved that we averted one other hospital keep. I’ve given him yet one more lecture (he loves my lectures, I’m positive 😀 ) about how he can’t quick, regardless of how a lot he needs to, and I’ve given each of us a great lecture on the way it simply doesn’t pay to eat meals that he is aware of he’s going to react to. Even when he thinks the tradeoff is value it for one yummy meal, it’s virtually by no means value it. The associated fee is manner too excessive for him.
In order that was our weekend. Perhaps at this time I can get a great chunk of time to work on the studio. Or perhaps I want a nap. We’ll see. However what I can let you know for positive is that M.S. is an actual bitch. (Sorry, however not sorry. I usually preserve issues PG-rated round right here, however after 19 years of us coping with Matt’s M.S., that’s simply what I’m feeling this morning.)
Addicted 2 Adorning is the place I share my DIY and adorning journey as I rework and beautify the 1948 fixer higher that my husband, Matt, and I purchased in 2013. Matt has M.S. and is unable to do bodily work, so I do nearly all of the work on the home on my own. You may be taught extra about me right here.
